Epi Pens
 
Because of the nature of this disease, many doctors recommend that their patients with mastocytosis carry Epi-Pens. As with all treatment, please consult your doctor regarding the use of an Epi-Pen with your child.

The following is a short excerpt from the June 2000 Issue ofHematology/Onocolgy Clinics of North America by Dean D Metcalfe, MD and Nicholas A Sotter, MD discussing the reasoning behind the decision to carry an Epi-Pen.

 

Because of the risk of anaphylaxis, the authors recommend that ALL patients with Mastocytosis or their parents regularly carry a set of emergency medicines with them (antihistamines and epinephrine). [page 635]

If a masto patient is also allergic to bee stings etc. the risk is very high. [page 667]

MKO had the opportunity to speak with the makers of the Epi-Pen when we attended the American Academy of Pediatrics convention in 2008.  The makers of Epi-Pen recommend that you carry your Epi-Pen Twin Pack as a set, not seperated.  They recommend this practice to ensure that you will have a functioning Epi-Pen in case of emergency.  The representatives discussed with us that many people misuse the first Epi-Pen in an emergency situation.  The Twin Pack allows for a second Epi-Pen to be available.

 

For more information on the proper use of an Epi-Pen, visit http://www.epipen.com/page/how-to-use-epipen-auto-injector-index. Epi-Pen also offers a free expiration reminder program. You can sign up for this at https://epipen.com/cas/account/

 

The Epi-Pen manufacturer’s home page provides instructional information on the proper use of an Epi-Pen.