Welcome to Mastokids.Org, where we are Raising Children and Raising Awareness! It is our goal to provide a place where parents and caregivers of children with mastocytosis can come to learn, find support, and discover a safe place for their children to interact with other Mastokids.
Welcome to Mastokids!
It is a great honor to start the new year by introducing the 2012 Mastokids' Board of Directors and Officers! These individuals generously sacrifice their time and energy to serve our organization, our members, the entire mastocytosis community, and of course, all of our wonderful children!
The members of our Board of Directors are Cris Richardson, Dawn Aldrich, Tina Propes, Amy Riviello, and Kristy Kowalik.
Officers for 2012 are Cris Richardson (President), Dawn Aldrich (Secretary), Amber Pittman (Treasurer), Heather Scheirmann (VP of Fundraising), Kristy Kowalik (VP of Research), Chelsea Kittleson (VP of International Relations), Tina Propes (VP of Awareness and Print Materials Coordinator), Leslie Golde (Support Group Coordinator), Amy Riviello (Member Support Coordinator), and Amista Lipot (Birthday Club Coordinator).
Many thanks to each of these ladies for serving. We know that exciting things are going to happen this year! Check back often for updates to our site and to see what’s happening at Mastokids!
Rare Disease Day 2012 is almost here. We would love to hear what the ways you are planning on spreading awareness for RDD this year. If you have any great ideas please submit them to Awareness@mastokids.org.
Alone we are Rare. Together we are Strong!
Two years ago, Mastokids was proud to partner with NORD (National Organization of Rare Disorders) in their first annual Rare Disease Day in the United States. Doing our part in spreading awareness, Mastokids created a video highlighting pediatric Mastocytosis and the tremendous support that we provide to parents of children with pediatric Mastocytosis. We were very pleased with our video and wanted to showcase it again for all of you who may not have had the chance to see it last year. We are again partnering with NORD and are doing much to continue to spread awareness of pediatric Mastocytosis and all rare diseases in support of Rare Disease Day, Feb. 29, 2011. Thank you for your support and your participation! Visit www.rarediseaseday.org to find out more about ways you can help spread awareness of pediatric Mastocytosis!
Mastocytosis is a rare disease whose cause remains unknown. What we do know is that the disease is the result of an overabundance of mast cells that are found normally within every human being's body tissues. Mast cells contain chemicals that are released into our systems to perform their various duties. In mastocytosis, the excessive number of mast cells release more of these chemicals than the body requires. The symptoms of mastocytosis are caused by the excessive amounts of chemicals interacting with body tissue.
Pediatric mastocytosis can take several forms, varying from mild forms to more severe forms of the disease. Any form of the disease presents challenges to raising children, and educating others on how mastocytosis affects their lives. We hope our site answers questions that arise for everyone involved in the lives of children with mastocytosis.
Mastokids.Org is non-profit 501(c)3 tax exempt organization. All individuals who participate in this non-profit organization are volunteers. No salaries are paid to anyone involved. All funds raised through our non-profit organization are used directly for sponsoring pediatric mastocytosis awareness, research and and for maintaining the non-profit organization.
INTRODUCING "THE SPOT MARKET"!!!
Ordering your favorite MKO products has just gotten easier! MKO launches its new online store...."The Spot Market"! The Spot Market can be found at www.mastokids.org/store.
Because we charge exact shipping, ordering at our online store is a little different. You will not be charged for your purchases at the time of your order. After your order is submitted, it will be gathered and shipping charges will be determined. An invoice with your order total, including shipping, will follow. This invoice will have payment information for your order. After payment is received, your order will be shipped to you.
During your first visit to the store, you will be asked to create a new account that will include your contact information and shipping address. This will be saved to make future orders easier. Please make note of your user name and password.
MKO members will receive a 25% discount off of the listed prices! The discount will be reflected on your invoice.
We thank you for your support of MKO in the past and hope that "The Spot Market" will help to make it easier to support MKO through the purchases of our products in the future!
Mastokids.org relies on generous donations from people like you. If you would prefer to make a donation via check, please make the checks payable to Mastokids and send your donation to:
Mastokids
P.O. Box 895
Mandeville, LA 70470-0895
Help raise money for Mastokids whenevery you search or shop. Sign up at Igive and select Mastokids.org as your cause.
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The information contained herein is not intended or implied to be a substitute for professional medical advice. Mastokids.org suggests you seek the professional care of your child’s pediatrician, a dermatologist, or internist to determine if your child has mastocystosis and how to manage his/her symptoms.
