This page lists links to resources that you may find valuable. If you find other resources that you think should be listed, please send contact information to our web site manager. Thanks!

Helpful Information for your Child's School

Basic Pediatric Mastocytosis Information Sheet

Letter for Classmates' Families - Raising awareness in your child's classroom

I'm A Little Mast Cell - Explaining mastocytosis on a child's level

Informational Sites and Articles

The Mastocytosis Society: A resource for all ages of people with all kinds of mast cell activation-related disorders.

Oklahoma Mastocytosis Support Group

NIAID - Fact Sheet on Mastocytosis

eMedicine - Mastocytosis : Article by Daniel Hogan, MD

National Organization for Rare Diseases

Society for Pediatric Dermatology

Canadian Organization for Rare Diseases

European Competence Network on Mastocytosis

European Organization for Rare Disorders

The UK Mastocytosis Support Group: A resource focused for patients and famlies in the United Kingdom.

Subscribe to an Email Discussion List

• One of the perks of joining Mastokids.Org is that you can then subscribe to our private, members-only email list, which gives you easy access to the knowledge and support of all of our Mastokids.Org members.
  
  
• The Masto-CHILD email discussion list is an independent discussion and support list maintained by Ivo Bouwmans. To subscribe, please click on the link above and follow Ivo's easy directions. Mastokids.Org is extremely grateful to Ivo for hosting and maintaining this list. It's a wonderfully supportive environment for our families. Thank you again, Ivo!