Masktokids Support Groups

Sometimes a real hug is better than a virtual hug. If you are looking for other Masto-Families in your area, just click on your state below to contact the leader of your local support group. We are always looking for volunteers to help fill out our map. If you would be willing to lead a support group in your area please contact our support group coordinator.


 


Other Mastocytosis Support Groups

USAF
This support group is for military families.  It is designed to help each other through finding health care professionals, insurance obstacles and military life with a mastocytosis child.
Dawn Aldrich
Dawn@mastokids.org

Special Needs Children-
If you know what OT, PT, PDDNOS, ASD, SPD or ST are, this support group is for you!  This support group is designed for parents who also have other special challenges in raising their mastokids. If your child is on the spectrum, has delays (language, motor, or other) as well as any other special need, we'd love to have you.  Even if your child has not been diagnosed, and you'd like to meet with other mom's who might understand your child's special needs, we welcome you to join us.  We'll help you navigate through the "alphabet soup" of therapies and diagnosis and help understand how it fits in with our mastokids. 
Tina Propes
Tina@mastokids.org

UK Support Group for Adults and Parents
Irene Wilson Support Group Leader (Phone 01506 431908)
winegums@blueyonder.co.uk 
www.ukmasto.co.uk